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Community support for families affected by dementia

02 May 2024
Volume 29 · Issue 5

Abstract

This paper provides and overview of the community support services that may be available for people with dementia and their family carers. The authors introduce dementia, including the impact of the diagnosis on both the person with dementia and the wider family. Using a case study approach, the authors describe the support available, spanning health and social care and third sector organisations. They discuss how this support can enable people with dementia and their carers to maintain wellbeing and cope with the impact of dementia. This article will be of interest to community nurses, and health and social care professionals more generally, who may encounter families affected by dementia in community settings. Having a good knowledge of the support available and how to access it will allow community nurses to capitalise on the health promotion opportunities presented to them, when they come into contact with families affected by dementia in the course of their day-to-day practice.

Dementia is increasingly encountered in community nursing settings, with an estimated 994000 people living with dementia in the UK at the present time (Wittenberg et al, 2019), being supported by around 700000 family carers. This number is set to rise to 1.7 million by 2050 (Lewis et al, 2014; Carers UK, 2021). Dementia can be defined as a set of symptoms occurring because of brain disease, characterised by a progressive decline in cognitive function including but not limited to memory, reasoning, language and problem-solving skills (Sandiliyan and Dening, 2019). It is also associated with behavioural and psychological symptoms (for example, anxiety or agitation), which affect a person's ability to carry out day-to-day activities and maintain social functioning (Arvanitakis et al, 2019). Dementia is a condition related to age, so is predominantly seen in older adults (defined as aged 65 years or more), but it can also manifest in younger people (under the age of 65 years), which is often referred to as young-onset dementia (Carter et al, 2022). There are many types of dementia, all with their own causes and symptom profiles, but the most common subtypes are Alzheimer's disease, vascular dementia, mixed dementia, Lewy body dementia and frontotemporal dementia (Cullum and Taye, 2021).

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