Arvanitakis Z, Shah RC, Bennett DA Diagnosis and Management of Dementia: Review. JAMA.. 2019; 322:(16)1589-1599

Baker K, Irving A Co-producing approaches to the management of dementia through social prescribing. Social Policy & Administration.. 2016; 50:(3)379-397

Bennett S, Laver K, Voigt-Radloff S Occupational therapy for people with dementia and their family carers provided at home: a systematic review and meta-analysis. BMJ Open. 2019; 9

Berghout M, Waller A, Lachapelle N Preferred type, timing and format of dementia information: A cross-sectional survey of carers of people living with dementia. Australasian Journal of Ageing.. 2023; 43:131-139

Bergman H, Borson S, Jessen F Dementia and comorbidities in primary care: a scoping review. BMC Primary Care.. 2023; 24

Brodaty H, Pond D, Kempm NM The GPCOG: a new screening test for dementia designed for general practice. Journal of the American Geriatrics Society.. 2002; 50:(3)530-534

Brown P, Harrison Dening K Assessing and managing agitation as a symptom of dementia. Nurs Older People. 2023;

Carter J, Jackson M, Gleisner Z Prevalence of all cause young onset dementia and time lived with dementia: analysis of primary care health records. Journal of Dementia Care. 2022; 30:(3)1-5

Chrysanthaki T, Fernandes B, Smith S, Black N Can memory assessment services (MAS) in England be categorized? A national survey. Journal Of Public Health.. 2017; 39:(4)828-840

Gomes M, Pennington M, Black N, Smith S Cost-effectiveness analysis of English memory assessment services 2 years after first consultation for patients with dementia. Int J Geriatr Psych.. 2019; 34:(3)439-446

Gómez-Soria I, Iguacel I, Aguilar-Latorre A Cognitive stimulation and cognitive results in older adults: A systematic review and meta-analysis. Archives of Gerontology and Geriatrics.. 2023; 104:104-807

Harrison Dening K, Aldridge Z, Pepper A, Hodgkison C Admiral Nursing: case management for families affected by dementia. Nursing Standard.. 2017; 31:(24)42-50

Kilty C, Cahill S, Foley T, Fox S Young onset dementia: implications for employment and finances. Dementia (London).. 2023; 22:(1)68-84

Livingston G, Barber J, Rapaport P Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial. BMJ.. 2013; 347

Lord S, Rochester L Role of the physiotherapist in the management of dementia, 5th edn. In: Ames D, O'Brien J, Burns A London: CRC Press; 2017

Mayrhofer AM, Goodman C, Lafortune L Third sector provision of dementia support in the community: results from a scoping exercise of charity involvement in the UK. Voluntary Sector Review.. 2023; 14:(2)368-378

Meyer C, O'Keefe F Non-pharmacological interventions for people with dementia: A review of reviews. Dementia.. 2020; 19:(6)1927-1954

Moore KJ, Crawley S, Fisher E Exploring how family carers of a person with dementia manage pre-death grief: A mixed methods study. Int J Geriatr Psych.. 2023a; 38:(3)

Moore A, Goss-Hill B, Harrison Dening K Recognition and assessment of dementia in a primary care setting. Primary Health Care. 2023b;

Moorhouse B, Fisher CA Speech and language therapy in dementia assessment and management, 5th edn. In: Ames D, O'Brien J, Burns A London: CRC Press; 2017

Pepper A, Harrison Dening K Person-centred communication with people with dementia. Nursing Older People. 2023;

Percival A, Newton C, Mulligan K, Petrella RJ, Ashe MC Systematic review of social prescribing and older adults: where to from here?. Family Medicine And Community Health.. 2022; 10

Royal College of Psychiatrists. National Audit of Dementia publishes Spotlight Report on Memory Assessment Services. 2022. https// (18 April 2024)

Seshan V, Matua GA, Raghavan D Case study analysis as an effective teaching strategy: perceptions of undergraduate nursing students from a Middle Eastern country. SAGE Open Nursing.. 2021; 7

Soong A, Au S, Kyaw B Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: a scoping review. BMC Geriatrics.. 2020; 20

Valkanova V, Ebmeier KP, Allan CL Depression is linked to dementia in older adults. Practitioner.. 2017; 261:(1800)11-5

Community support for families affected by dementia

02 May 2024
Volume 29 · Issue 5


This paper provides and overview of the community support services that may be available for people with dementia and their family carers. The authors introduce dementia, including the impact of the diagnosis on both the person with dementia and the wider family. Using a case study approach, the authors describe the support available, spanning health and social care and third sector organisations. They discuss how this support can enable people with dementia and their carers to maintain wellbeing and cope with the impact of dementia. This article will be of interest to community nurses, and health and social care professionals more generally, who may encounter families affected by dementia in community settings. Having a good knowledge of the support available and how to access it will allow community nurses to capitalise on the health promotion opportunities presented to them, when they come into contact with families affected by dementia in the course of their day-to-day practice.

Dementia is increasingly encountered in community nursing settings, with an estimated 994000 people living with dementia in the UK at the present time (Wittenberg et al, 2019), being supported by around 700000 family carers. This number is set to rise to 1.7 million by 2050 (Lewis et al, 2014; Carers UK, 2021). Dementia can be defined as a set of symptoms occurring because of brain disease, characterised by a progressive decline in cognitive function including but not limited to memory, reasoning, language and problem-solving skills (Sandiliyan and Dening, 2019). It is also associated with behavioural and psychological symptoms (for example, anxiety or agitation), which affect a person's ability to carry out day-to-day activities and maintain social functioning (Arvanitakis et al, 2019). Dementia is a condition related to age, so is predominantly seen in older adults (defined as aged 65 years or more), but it can also manifest in younger people (under the age of 65 years), which is often referred to as young-onset dementia (Carter et al, 2022). There are many types of dementia, all with their own causes and symptom profiles, but the most common subtypes are Alzheimer's disease, vascular dementia, mixed dementia, Lewy body dementia and frontotemporal dementia (Cullum and Taye, 2021).

Register now to continue reading

Thank you for visiting Community Nursing and reading some of our peer-reviewed resources for district and community nurses. To read more, please register today. You’ll enjoy the following great benefits:

What's included

  • Limited access to clinical or professional articles

  • New content and clinical newsletter updates each month