Scoping studies: towards a methodological framework. 2005.

Initiating decision-making conversations in palliative care: an ethnographic discourse analysis. 2014.

key worker nurses are crucial to coordination of cancer care. 2015. (accessed 28 March 2022)

Making sure services deliver for people with advanced heart failure: a longitudinal qualitative study of patients, family carers, and health professionals. 2009.

Using thematic analysis in psychology. 2006.

Who is the key worker in palliative home care?. 2011.

Global palliative care: from need to action. 2019.

A capacity building program to improve the self-efficacy of key workers to support the well-being of parents of a child with a disability accessing an early childhood intervention service: protocol for a stepped-wedge design trial. 2019.

Department of Health. Living matters, dying matters strategy: a palliative and end of life care strategy for adults in Northern Ireland. 2010. (accessed 10 May 2022)

Department of Health. End of life care strategy: quality markers and measures for end-of-life care. 2009. (accessed 10 January 2022)

Department of Health, Social Services and Public Safety. A district nursing framework 2018-2028: 24-hour district nursing care no matter where you live. 2018. (accessed 11 January 2022)

Perceptions of interprofessional communication: causes and effects on patient care, occupational stress, and job satisfaction. electronic theses and dissertations. 2009. (accessed 10 January 2022)

Palliative care for patients with cancer: District nurses' experiences. 2005.

The role of the key worker in breaking down professional culture barriers to providing high-quality palliative care: a literature review. 2014.

Gold Standards Framework. End of life care in primary care. 2009. (accessed 28 February 2021)

Health and Social Care Board. Advanced care planning - your life and your choices. 2017. (accessed 18 March 2020)

Understanding the concept of the key worker: do focus groups help?. 2014.

International Association for Hospice and Palliative Care. Introduction to palliative care. 2019. (accessed 8 March 2021)

Joanna Briggs Institute. Methodology for JBI Scoping reviews. 2015. (accessed 1 March 2020)

Scoping studies: Advancing the methodology. 2010.

Exploring the role of key workers in cancer care: patient and staff perspectives. 2017.

key worker-mediated enhancement of physical health in first episode psychosis: protocol for a feasibility study in primary care. 2019.

‘District nurses' experiences of providing palliative care in the home: an interview study’. 2020.

Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement: The PRISMA Group. 2009.

National Council for Palliative Care and Skills for Care. Understanding roles: working together to improve end of life care. 2014. (accessed 28 March 2021)

National Institute for Health and Care Excellence. Improving supportive and palliative care for adults with cancer. 2004. (accessed 28 March 2021)

Palliative Care in Partnership. Palliative care key worker: role and function. 2017. (accessed 28 March 2021)

Guidance for conducing systematic scoping reviews. 2015.

A systematic review of the care coordination measurement landscape. 2013.

PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. 2018.

The role of key workers in supporting people with intellectual disability in the self-management of their diabetes: a qualitative New Zealand study. 2016.

Informal care givers' experiences with support in primary palliative care when a case manager is involved: a descriptive study in the Netherlands. 2017.

Modelling demand and costs for palliative care services in England. 2021. (accessed 23 June 2022)

World Health Organization. Planning and implementing palliative care services: a guide for programme managers. 2016. (accessed 8 July 2021)

Roles and responsibilities of the community palliative care key worker: a scoping review

02 August 2022
Volume 27 · Issue 8


This article illustrates the completion of a scoping review of the evidence relating to the role of the palliative care key worker, providing an insight into current literature. While advocated in international and national policies, the evidence underpinning this role is lacking, with only five empirical papers: two national and three international. The review identifies the need for the key worker role in palliative care; however, little consensus exists on who should adopt this role and their remits. Several implementation barriers are cited relating to communication and training. Further research on the development, implementation and consensus on the allocation of duties of the key worker role would expand the existing evidence base.

Internationally, the role of the key worker was introduced to enhance patient-centred care and is a fixture across health and social care systems (Brogaard et al, 2011; International Association for Hospice and Palliative Care, 2019a). Since its first description by the World Health Organization (WHO) in 2016, there has been little evidence of the implementation of a clear definition of this role across the globe. Without standardisation, the title, role and function vary accordingly within and across countries and professions (Feuz, 2014; Hull and Turton, 2014). For example, in the UK, variance of key worker roles across clinical settings exist (Table 1).

There has been an upshoot in the demands faced by the palliative care sector globally (Centeno and Arias-Casais, 2019) and nationally (von Petersdorff et al, 2021) for its services rendered. However, there is a need for coordination to meet such demands. Within palliative care, the key worker is described as a professional whose key responsibilities are the planning and coordination of care of patients requiring end-of-life care, with an aim to maximise their quality of life (Palliative Care in Partnership, 2017). Generally, they are based in the community care setting and are responsible for engaging with patients and their families while sharing information with the wider multidisciplinary team (Gold Standards Framework, 2009). They can also develop therapeutic relationships with the patient and their family to become an effective advocate before deterioration, thus facilitating shared decision–making. This also allows the key worker to network with other services (including voluntary) to help provide the tools for the best quality of life before death (Department of Health (DH), 2010; Health and Social Care Board, 2017).

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