References

Bayliss J. Counselling skills in palliative care. 2004;

Supporting the bereaved in palliative care

02 August 2019
Volume 24 · Issue 8

Loss, grief and bereavement are relatives in palliative care terms, as these three notions are connected. Loss in the form of death leads to grief, which is the expression of the pain or hurt caused by the loss. The expression of grief and the period over which it is expressed is often referred to as the bereavement phase. It follows, therefore, that when bereavement is discussed, the loss and grief associated with it should also be kept in mind. Bereavement comes directly from grief that has been triggered by a loss. In palliative care, the loss is often the death of a loved one. The term ‘loved one’ suggests that there is affection (emotional connection) between the person who has died and those left behind. It is true that the depth of the emotional connection (affectionate bond) with the deceased person often determines the degree of grief (emotional pain/hurt) felt during the bereavement phase. It is, therefore, normal for the bereaved who had a deep affectionate bond to experience more painful grief, and this should not always be pathologised (Bayliss, 2004). What has simply happened is that the bereaved may be trying to make sense of their loss and determine how to carry on with life without the deceased person. In some cases, people fail to see a way forward and may experience suicidal ideation, with some acting on these thoughts. As community nurses, our skills of assessment are crucial, whereby we can decide the level of support to offer. This means first distinguishing the ‘normal’ grieving reaction to a painful loss and identifying when the grief is so immense that the bereaved would benefit from additional support.

Types of support for the bereaved

Providing support for the bereaved can include some of the following:

  • Emotional support, which helps the bereaved to express how they are feeling and thinking. Emotional support provides the bereaved a ‘safe space’ to verbalise emotions such as anger, hurt, emptiness and loneliness, including letting them scream and cry. This could be an emotionally cleansing act, through which the bereaved person can sort out their own chaos and move on with life
  • Informational support is based on community nurses' initial understanding of the immediate or pressing needs of the bereaved, after which they provide relevant information. It is important that giving information not be confused with giving advice, as the latter is the nurse's opinion, which may not reflect what the bereaved wants from them. Nurses must refrain from giving advice until such time that they have gathered all the bereaved individual's concerns, or the bereaved individual asks for it. By providing information first, nurses help the bereaved to process what has happened, begin to make sense of it and consider how they may want to move forward. Nurses' support should be tailored to the bereaved person's wishes
  • Practical support helps in making sure that day-to-day tasks or activities continue despite the chaos that death brings. When practical support is provided effectively, (preparing meals, looking after children and ensuring that medication is taken as prescribed), it may have the power to enhance confidence and self-esteem in the bereaved by empowering them to be in control of these mundane tasks.
  • Funeral as support mechanism

    Have you ever wondered what funerals are for, or more closely, for whom they are held? It is clear they are not for the deceased (even if they had planned their own funeral), as they cannot consciously take part in them. Therefore, it can be argued that funerals are for the benefit of the bereaved, but how? Most funeral rituals help the bereaved say goodbye, pay their last respects and also close their own emotional chapter. However, when the deceased leave instructions about the funeral (for example, no dark clothes, no crying, only cheerful music and plenty of laughter), it can create conflict in the mind of the bereaved as they may be torn between carrying out these instructions and mourning, and may end up feeling guilty if they are unable to comply. Community nurses should find it possible to attend some funerals as a way of supporting the bereaved. All these supportive activities are embedded in palliative care, and community nurses should exercise the principles of palliative care with bereaved families.

    Palliative care should not be an alternative to other models of healthcare. It is not in competition with efforts to provide other types of care, nor is it a poor relative to be implemented where other support is inaccessible. Palliative care is an essential part of a holistic person-centred healthcare system, which should work in partnership with other approaches to support bereaved relatives and close friends.