References

Bergenholtz H, Missel M, Timm H Talking about death and dying in a hospital setting - a qualitative study of the wishes for end-of-life conversations from the perspective of patients and spouses. BMC Palliat Care. 2020; 19:(1) https://doi.org/10.1186/s12904-020-00675-1

Ellington L, Reblin M, Clayton MF Hospice nurse communication with patients with cancer and their family caregivers. J Palliat Med. 2012; 15:262-268 https://doi.org/10.1089/jpm.2011.0287

Ferguson E, Wiseman L, Stratton F Exploring the delivery of end-of-life care by community nurses. Br J Community Nurs. 2023; 28:(11)542-548 https://doi.org/10.12968/bjcn.2023.28.11.542

Graham-Wisener L, Nelson A, Byrne A Understanding public attitudes to death talk and advance care planning in Northern Ireland using health behaviour change theory: a qualitative study. BMC Public Health. 2022; 22 https://doi.org/10.1186/s12889-022-13319-1

House of Commons. Terminally Ill Adults (End of Life) Bill. 2024. https://bills.parliament.uk/bills/3774/publications (accessed 18 November 2024)

Knutzen KE, Sacks OA, Brody-Bizar OC Actual and missed opportunities for end-of-life care discussions with oncology patients: a qualitative study. JAMA Netw Open. 2021; 4:(6) https://doi.org/10.1001/jamanetworkopen.2021.13193

McLennon SM, Uhrich M, Lasiter S Oncology nurses' narratives about ethical dilemmas and prognosis-related communication in advanced cancer patients. Cancer Nurs. 2013; 36:114-121 https://doi.org/10.1097/ncc.0b013e31825f4dc8

Wilson E, Caswell G, Turner N Talking about death and dying: findings from deliberative discussion groups with members of the public. Mortality. 2022; 29:(1)176-192 https://doi.org/10.1080/13576275.2022.2136515

Navigating death talk in a changing society

02 December 2024
Volume 29 · Issue 12

It is good to talk. This expression has adorned countless appeals, advertisements, posters, podcasts and inspirational GIFs, all aiming to sell an idea, product, or service, build connections, boost confidence, raise campaign awareness or inspire changes in attitudes, beliefs, behaviours and understanding. The dictum seems inherently sensible and is borne out by other proverbial idioms that identify with the idea of communication making life easier, such as ‘a problem shared is a problem halved’.

For many years, policies and practices for improving the provision of palliative and end-of-life care have been predicated on the need to promote ‘death talk’ to and among a population that might otherwise have been (sometimes and often erroneously) considered unwilling to engage or feel prohibited from actively contributing to the debate or discussion (Wilson et al, 2022). In recent times, Marie Curie (2021) identified that, while people may convey the impression that they feel comfortable talking about death and dying, few actually do so in terms of formally planning end-of-life preferences and arrangements. This may be, in part, because people lack the knowledge of services or linguistic or interpersonal communication skills to have such conversations (Graham-Wisener et al, 2022).

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