Allsop M, Kite S, McDermott S, Penn N, Millares-Martin P, Bennett M. Electronic palliative care coordination systems: devising and testing a methodology for evaluating documentation. Palliat Med. 2017; 31:(5)475-482

Braun V, Clarke V. Thematic analysis. In: Cooper H, Camic PM, Long DL, Panter AT, Rindskopf D, Sher KJ (eds). Washington DC: American Psychological Association; 2012

Department of Health and Social Care. Our commitment to you for end of life care: The government response to the review of choice in end of life care. 2016. (accessed 1 December 2020)

Finucane A, Davydaitis D, Horseman Z Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care. Br J Gen Pract. 2020; 70:(690)e20-e28

Huber M, Highland J, Krishnamoorthi V, Tang J. Utilizing the electronic health record to improve advance care planning: a systematic review. Am J Hospice Palliat Med. 2017; 35:(3)532-541

Lemon C, De Ridder M, Khadra M. Do electronic medical records improve advance directive documentation? A systematic review. Am J Hospice Palliat Med. 2018; 36:(3)255-263

Leniz J, Weil A, Higginson IJ, Sleeman K. Electronic palliative care coordination systems (EPaCCS): a systematic review. BMJ Support Palliat Care. 2020; 10:(1)68-78

Lovell A, Yates P. Advance care planning in palliative care: a systematic literature review of the contextual factors influencing its uptake 2008–2012. Palliat Med. 2014; 28:(8)1026-1035

NHS Scotland. Frequently asked questions on the key information summary (KIS). 2013. (accessed 1 December 2020)

Petrova M, Riley J, Abel J, Barclay S. Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from. BMJ Support Palliat Care. 2018; 8:(4)447-455

Pocock L, Wye L, French L, Purdy S. Barriers to GPs identifying patients at the end-of-life and discussions about their care: a qualitative study. Fam Pract. 2019; 36:(5)639-643

Pringle A, Finucane A, Oxenham D. Improving electronic information sharing for palliative care patients. BMJ Qual Improve Rep. 2014; 3:(1)u201904-w1014

Riley J, Madill D. Coordinate My Care: a clinical approach underpinned by an electronic solution. Progress in Palliative Care. 2013; 21:(4)214-219

Scottish Clinical Information Management in Practice. KIS archive. 2020. (accessed 1 December 2020)

Tapsfield J, Hall C, Lunan C Many people in Scotland now benefit from anticipatory care before they die: an after death analysis and interviews with general practitioners. BMJ Support Palliat Care. 2019; 9

Shared electronic care coordination systems following referral to hospice

02 February 2021
Volume 26 · Issue 2


In Scotland, the Key Information Summary (KIS) enables health providers to access key patient information to guide decision-making out-of-hours. KISs are generated in primary care and rely on information from other teams, such as community specialist palliative care teams (CSPCTs), to keep them up-to-date. This study involved a service evaluation consisting of case note reviews of new referrals to a CSPCT and semi-structured interviews with palliative care community nurse specialists (CNSs) regarding their perspectives on KISs. Some 44 case notes were examined, and 77% of patients had a KIS on CSPCT referral. One-month post-referral, all those re-examined (n=17) had a KIS, and 59% KISs had been updated following CNS assessments. CNSs cited anticipatory care planning (ACP) as the most useful aspect of KIS, and the majority of CNSs said they would appreciate KIS editing access. A system allowing CNSs to update KISs would be acceptable to CNSs, as it could facilitate care co-ordination and potentially improve comprehensiveness of ACP information held in KISs.

Electronic palliative care coordination systems (EPaCCS) are being developed in many localities to coordinate care across health and social care settings for people with advanced illnesses. Regional UK examples include Coordinate My Care, the South-West EPaCCS and Leeds EPaCCS (Riley and Madill, 2013; Pringle et al, 2014; Allsop et al, 2017; Petrova et al, 2018). In Scotland, the Key Information Summary (KIS) is used to coordinate this care (NHS Scotland, 2013; Petrova et al, 2018; Scottish Clinical Information Management in Practice, 2020). The KIS enables unscheduled healthcare providers, including ambulance and emergency services, out-of-hours GPs and palliative care teams, to access patient information and care preferences, guiding clinical decision-making out-of-hours (NHS Scotland, 2013; Tapsfield et al, 2019).

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